Notre Dame, IN - Notre Dame FCU is partnering with the University of Notre Dame's College of Science to support the Ara Parseghian Medical Research Foundation. It is sponsoring the fifth annual Road to Discovery bike ride. Representatives from NDFCU will be active participants in the cross-country Road to Discovery bike ride helping bring awareness and promote fundraising to find treatment and a cure for the rare and deadly disease, Niemann-Pick Type C (NPC).
This year’s Road to Discovery will take Gregory P. Crawford, dean of the College of Science at the University of Notre Dame, on a 3,500-mile journey from Long Island, New York, to Pebble Beach, California. He will arrive at Pebble Beach on June 26 in time for the annual Parseghian Classic golf tournament benefiting Niemann-Pick Type C (NPC) disease research.
The Ara Parseghian Medical Research Foundation is named in honor of beloved Notre Dame Football Coach, Ara Parseghian. The foundation is a non-profit organization dedicated to funding medical research projects to find a treatment for Niemann-Pick Type C (NP-C) disease; a deadly disease that took the lives of three of Parseghian’s grandchildren.
Expanding Crawford’s fundraising efforts, this year’s Road to Discovery will also raise funds for research for other rare diseases, including ones that affect young children, nonketotic hyperglycinemia (NKH) and NGLY1 deficiency. NKH is a condition that prohibits the body from properly breaking down the amino acid glycine, which can lead to developmental issues, seizures and brain damage. NGLY1 deficiency is a disorder that causes the accumulation of glycoproteins in the body, which can result in developmental delays, abnormal tear production and liver disease. The goal of this year’s Road to Discovery is to raise $1 million for research for rare diseases at Notre Dame’s Boler-Parseghian Center for Rare and Neglected Diseases.
The 2015 Road to Discovery is also sponsored by Ivy Court Inn & Suites, 1-800 Flowers, Aegerion Pharmaceuticals, Amicus Therapeutics, Retrophin and Rein Juicery.
About Notre Dame FCU
Notre Dame Federal Credit Union, headquartered in Notre Dame, Indiana, is a not-for-profit financial cooperative. With assets in excess of $470 million, Notre Dame FCU’s dedicated partners (employees), coupled with a wide array of financial services, provide members a personalized experience at the credit union’s nine convenient branch locations, its virtual branch (Shamrock Center), and through its robust online banking platform and mobile apps. From its humble beginnings in May of 1941, operating out of the night watchman’s office in the Main Building on the campus at the University of Notre Dame, Notre Dame FCU has grown into a national financial institution, serving over 57,000 members in all 50 states and throughout the world.